Colorful Ciss

Hi there, Although I am nervous about this, I want to share my story. What I have, how I got diagnosed, etcetera. It has been difficult for me to figure it out myself, and I find it even harder to put it into words. But, here goes nothing... I am a 20 year old woman who has something called Undifferentiated Spondyloarthropathy (Yeah try saying that one five times fast). It is an autoimmune disease that, in my case, means my immune system is looking at my good tissues in my body, thinking they are bad foreign substances, and attacking them. It usually starts with severe back pain, specifically in the Sacroiliac joint (the part of the back where the spine and hips meet) and then moves on to other parts of the back as well as other organs. Often times, if the immune system attacks joints, bones will calcify, or grow, and sometimes fuse together. Spondylitis is three times more likely in men than it is in woman, but is first discovered in young adults. Like all ...

Hi there, As I come up on another treatment of Remicade, I realize how much I had searched the web for any kind of video or blog describing how everyone's experience with this treatment went for the first treatment, what they bring, how it goes, how they feel after, etc. So, I decided that maybe, now that I have had my first treatment, I should share my experience of how treatment 1 and week 0 went.  The day before my Remicade treatment   I was a bundle of nerves. I was excited because this may actually help me. Nervous that it wouldn't or that I would react weird to it. Scared about getting poked by a needle. I was second guessing myself and my decision. What if I didn't need this treatment? But I was lucky enough to have someone who supported me by my side. That was definitely something I needed. We both made sure we had everything for the day and made lists of what we should each remember the next day. We also decided to call it a night ea...

Hi there, I have been considering what I wanted my first post to be for some time now. I had gotten as far as wanting to begin and then not sure from there. What do I say first? Where do I start? What would people want to read? I have come to the conclusion to start from the beginning. Usually a good place to start. I don't want to give you my whole story, not yet. I am still working on figuring that out myself. So for now, how about the story of why this blog exists, some goals I have in store for the future, etc.  It began one dark and stormy night.... Just kidding! The idea did make its presence during the night, however, I don't remember the weather. I had been toying with the idea of starting a blog for quite a while, honestly for something to do. But I could not figure out where to start idea wise. What did I wish to write about? Thus, I never had any motivation to pursue this blog idea. It wasn't until I got diagnosed with an autoimmune disease, or as my doc...