Colorful Ciss

Hi there, I would like to take a moment and step aside to address not only those who take care of us, but are just in our lives in general. I know it's tough for us to express to you what we need and want and that can make it frustrating on your end. There are a few things that we want you to know, and understand, but not always want to say. First off, we love you and appreciate you. We are so thankful for you still being by our side even when we don't say so. We love everything you do. Thanks for understanding when we literally don't feel like going out, not because its not interesting to us, but we are mentally and physically drained. Thanks for being our friends, and our care givers. I know that sometimes that we don't tell you thank you. Don't take it to heart when we don't.  Sometimes, we just don't know how to thank you enough.  Yes, sometimes we annoy ourselves. We know we are using the same reasons over and ...

Hi there, I just wanted to drop a little update on how my treatment is going.  I have made it through my induction phase of Remicade and am glad to report that all is going well with it. Pain wise, I am feeling relief most days. It is easy to get up out of bed and walk myself to the bathroom. I feel as though I don't have to plan my day around my pain. I can enjoy myself when I am out with friends, rather than wondering if my next step will end the fun. I am able to relax a little more, which is nice.  I do still have bad days, which seem to bring me down emotionally. Thankfully, I have people around me who support me and allow me to get upset and cry if I need to. If there is one thing I have learned, it is that having someone with you in this is the greatest blessing you can have. Although you may still feel alone, that person (or people) can hold you and let you cry or distract you and make you laugh. They may not fully understand what you feel, b...