Colorful Ciss

Hi there, Recently, this world has lost two amazing people. Both of whom were battling their own forms of disease. It really hit me hard to not only know these two, but to watch their battles and realize that I myself am diagnosed with my own disease. Disease comes with complications. We all know that. It's scary and true. We live day to day, putting that reality aside and try to survive as a normal person. Then there comes a day where some of us no longer can put it aside, and complications arise, and battles are lost. One of the purposes of this blog is to share people's stories. I would like to share the story of the first friend I lost since I was diagnosed. Scott was one of the happiest people I knew. No matter what happened he always found a way to smile. I had the pleasure of working along side of him in my first ever job. We both worked at a local restaurant, I as a host, and he was a bus boy. The hosts and bus boys had each others backs. Not too long after I ...

Hi there, So, if any of you are like me, you cannot walk into a doctors office without being stabbed with a needle. Weather it be for labs or for infusions or whatever else, the instant I decide to walk into a doctors office I can fully know that I will in fact have a needle put in me. I have come to prepare myself and always bring a snack bar. (I don't do well with needles and have found that eating something after being poked calms me down and prevents me from passing out.) I find it funny how it is the solution to everything for me nowadays. Oh you are having nose bleeds? Blood work. Oh you have a cold? Blood work. Oh you are feeling fine? Blood work. I mean half of my reason I go to a doctors office is to have a needle put in. Every six weeks I voluntarily go to a doctors office to get my regular labs, and every eight weeks I am walking into the infusion lab to get an IV with meds.  Now I completely understand why I always have needles in me whe...