Colorful Ciss

Hi there,  I have a couple of things that are potentially going to change soon. Change can be good, and it can be scary. Sometimes it's a new adventure! Sometimes its something so small that it slips into your life without you really noticing. But either way change happens in our lives sometimes more than we would like.  One major possible change is whether or not I will be staying on Remicade. Now, before you ask, no, I have not had a reaction to it, and yes, it is still working very well for me. So, why am I possibly removing this life changing treatment from my life? Well let me be blatantly honest: money. Some of these treatments that help those of us with chronic illnesses can cost an arm and a leg. They can be (depending on your insurance) a very high expense each time you go in for a treatment. Its sad really. This infusion has given me complete control of my life again. I am able to walk and go about my day with minimal pain most ...

Hi there, As you know, I recently got married. Along with having our beautiful wedding, we also had the opportunity to have a week long honeymoon. Yes, one whole week of vacation! I thought it fit to continue my "How to" series with sharing my first experience with a long vacation since I have gotten diagnosed.  We decided to honeymoon at Disneyland. And let me tell you, we absolutely loved it! Sounds silly, but we found it to be more practical to get annual passes so we could continue to enjoy it all year long (considering if we flew somewhere, an annual pass was the same price as a plane ticket to most places). We decided to stay a Best Western across the street from the entrance and I believe we both would stay there again in a heartbeat. There were so many great food options both at the park as well as near the hotel. I couldn't be more happy with our honeymoon. It was perfect for us. Now being that we had annual passes, we felt able to really relax. We...