Colorful Ciss

Hi there, It has been quite a while since I have made a post. Between preparing for our wedding and work getting a bit hectic, I haven't found time to set aside to post in a bit. But I thought I should drop a quick update on how life has been.  As I said, I am preparing for our wedding, and it has gone so well! I have noticed that I tend to measure my time in treatments. Okay, I know that sounds odd, so let me explain. For me, Remicade treatments happen every eight weeks. Thus, it has been a great little reference point on how close my wedding is. I am down to one more treatment before my wedding! That just makes it seem so real and so very close. I have had a blast with all of the wedding preparations. But I have also been grateful that we gave ourselves so much time to prepare for the big day. With having continued treatments, I found myself down periodically for several days, unable to do much in regards to decorations and planning. So...

Hi there,  One year! A lot can happen in one year. For me, a lot did happen in a year. I turned another year older. My car failed me (still a little upset about that one). I got engaged! I started wedding planning. We found a house that we will be moving into. There are so many things in life that I have been able to experience, to participate in, and my treatments have allowed that. One year ago today I started my Remicade journey! So in the last 365 days I have gotten a total of 8 Remicade treatments. I am finally proud and confident talking about my disease and my treatments. I am a fighter. I battle my own body every day. It has taken me a long time to not only talk about my Spondylitis, but to own it. I am going through chemotherapy. No, wait. I am SOARING through chemotherapy, and I am so happy to be doing so. I am sick, I am never going to get better, and I think I am doing a pretty good job at life.   This may all sound so silly but, today feels...

Hi there, February! Just a little over a month into a new year and just a few days into a new month. And this new month is bringing lots of new things into my life.  I am looking at my last couple of weeks in my first year of Remicade. Wedding plans are going along fairly nicely, and relatively stress free, might I add! And now, with this new month, I am getting ready to move into an amazing place.  I am beyond excited that I will be moving into my own place. No roommates, until I get married that is. This just makes us feel like we are going to be one step closer to being married and starting our newly wed lives off. Timing, however, is going to be a bit odd for me. I am moving the end of this month. I also have my next treatment on the first of March. Which means I will be having to move into a new place a day or two before treatment. Yikes! I guess the night before I will have the most important boxes unpacked first. Oh and of course, my bed set up, becaus...